Tuesday night entry

Dear friends,

Janet rested in surgical intensive care all day Tuesday. She was monitored closely and was visited by many specialists. Everyone is hoping that she will get some movement back in her legs, but it is not happening. It is not hopeless, but it is grim. The doctors will give her a couple more days before we move in another direction.
Our son GW remained with Janet all through the night. I came in for 5 hours in the morning to early afternoon. This was important since the doctors made their rounds during this interval. We had a terrible scare when her Tarceva anti cancer pills went missing in all the turmoil from moving her from an oncology ward to surgery and then to intensive care on Sunday and Monday. She missed one day's dose. I was able to track them down and get thekm into the right hands. It was frightening to janet and me, since this medicine is not commonly available and is the sole thing attacking the cancer at the moment since we cannot do the chemo or resume the radiation. Each day is like this: some crisis or critical decision making, or bureaucratic problem or medical setback. There is no rest.
Aleta came in and covered from 2 pm until early evening. Joan Chouili came in mid evening, but was concerned about Janet's status. Janet is not in imminent threat of death, but she is vulnerable and possibly suffering at times if the nurses do not pay attention. During the day, the care was superb and professional, but at night it may be a different situation. At this moment, Aleta is rushing back to the hospital to check. If need be, she will summon me for an all night vigil. If problems like these continue, our small family may need some help. Janet's mother had to return to Hartford since her medications were running out.

I must now order some new Tarceva before I forget tonight. The hospital may overlook it or there may be another snafu.

So the doctors are not optimistic, but I have been told that in cases like these, miracles do occur. Please keep the prayers and thoughts coming in.
Our poor gal so badly needs a positive break...........

george sr.