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Wednesday, June 18, 2008

Janet's progress on Wednesday

Dear friends,

There was some good news today.

Two dear professonal and dancer friends of Janet (Professor Carol Handwerker of Purdue University and Joan Chouili) and I met a Kaiser oncologist at a Kaiser onology center to review Janet's condition. Ideally Janet herself would have made the appointment, but she is still in the hospital getting tender loving care. After discussing the case, the Kasier oncologist decided to recommend a referral to Johns Hopkins for a possible clinical trial. This is very good news and we will at least get a second opinion about her case and perhaps even access to clinical trials at Hopkins. This is exactly what Janet was hoping for.

In the meantime, we still have several very good leads and contacts to the National Institute of Health and Georgetown University -Lombardi cancer center, should we need to fall back on other help.

Special thanks to all of you who have helped us get to this point. In time, Janet and I will try to respond to all of you. By the way, I screened 140 email messages today on Janet's two email accounts.

And to Joan and Carol: God bless you. Janet could not have gotten the medical care breakthrough today without your help.

Now we hope Janet's lung stabilizes. Please keep the thoughts and prayers coming.

Sorry: No general visitations and no phone calls please.

Postscript: (I wish this blog would let me cut and paste. It doesn't.)

I cotinue to print out each preceeding day's blog entries and bring them in to show Janet.

She continues to be in good spirits, but she is still draining from the right lung. Today we almost thought we detected a noticeable downward trend in this, but then there was a blip back up. Physicians have assured her to be patient and not panic about this.

So Janet continues to recuperate and save her strength. She is eating and breathing well and reading and listening to dance rythyms on the MP3 player.
george

5 comments:

Anonymous said...

Dear Janet and George,

We are so glad that you got the highly hopped and desired referral to Johns Hopkins!!!
Now we will keep our fingers crossed that the amount of fluids coming from the lung will diminish quickly and you will be able to see soon the expert in Johns Hopkins.

We are thinking about you and your children all the time.

Naomi and Ofer

Unknown said...

(Tony the Tiger impression)

Thaaats Great!

Way to go "No is not an option" George!

On to the next match now that you've won this 12 round TKO.

Billy

Sam Liao said...

AH YEAH!!!!! I am so happy to hear some good news! AWESOME BABY!!

Sam

Stream said...

Hi Janet
glad to get the updates and good news about Hopkins!
The Dragons will play at Potomac Overlook Saturday night. Remember the lovely scene: the grassy slope and all the families picnic'ing; the cute little children running and dancing in front of the stage. This time Zaina (Lori) will dance with us to Leila (Gordon has worked out a taqsim intro which slyly includes quotes from Clapton's Layla). Later in the program she will dance to a medley: ney taqsim, chiftetele and saaidi with drumsolo by Dale.
We will be thinking of you and sending you healing Overlook energy embraces.
love Stream

Nabila said...

Janet and Family,
The approval from Kaiser to get a second opinion and cancer trials is the best news! I am really happy. This is what I have been praying for because I know it is hard to get them to refer one outside of the network.

I will continue praying that your lung improves so you can see the doc quickly.