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Tuesday, June 24, 2008

Janet is home on Tuesday evening

Hello all,
Janet was discharged from the hospital on Tuesday afternoon, but it was a close call. She had a difficult Monday night with discomfort and pain until it was brought under control with medication. They checked her bad lung in the morning to see how it was doing after the catheter drain tube was extracted yesterday. Today they were worried about a small collapse in the top. In such situations, it is common to hold the patient over and reinsert a tube to reinflate the lung. The doctors decided that it was small and we will not resort to that. So Janet was allowed to return home tonight and tomorrow so that she can rest prior to her important consultatio at Hopkins on Thursday morning. We hope there will be a good clinical trial that she will qualify for.
So Janet is resting quietly, getting a little exercise, getting some good food from her mother who is now here with us, and doing some reading. We have a lot of medications for her and I was careful to get clear instructions on how to apply them. I was with Janet the entire day today. She will likely spend some of her time on Wednesday looking at some of the chemo options and clinical trial information in order to prepare for the meeting. So we all hope she can get a good night's rest.
My son G.W. and I have compiled a lot of information into a well organized 3-ring binder. It includes information about the chemo options from a variety of sources, including from many of you out there who were kind enough to send it to us. For the moment, we are focusing on standard chemo treatments and clinical trail chemo options, but I have been saving and filing information on alternative treatments too. When Janet is stabilized enough by the primary treatments, we might look at the alternative treatments as a supplement. If she is in a clinical trail, they may request that we not use such alternative treatments though, lest it upset the controls of the clinical trial experiments.
Good night dear friends.
george

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